Friday, 12 October 2012

Up and down , Get up !

Yesterday, was a very long day we left home at 6am to travel to Sydney for my last review appointment. We arrived home at midnight. I felt for my husband.

Up and down the emotional rollercoaster the highways and by-ways is physically, emotionally and mentally exhausting - the round trip is 700km /10hrs... I wasn't driving. It's a relief my next treatments will be 15mins from home. 

The Oncology review clinic was running 2hrs late - we exited our 10:45 appointment at 1:30pm. We saw Dr #1 at about 12:45pm for 10 mins, then waited 15 mins in between to see the Oncologist for 10mins.

It was all good with nothing new to be learned. They don't even examine me. I'm not not complaining , just saying I'm glad we had another reason for the trip down to Sydney.

When you arrive you wait in big 'muster' waiting area before being 'drafted' in smaller waiting rooms down the corridor or waiting for your beeper to go off saying they are ready for you in Chemo or in Radiation.

I'm  a little bit thankful appointments were late, because I got to briefly catch up with my 'old playgroup' friend, A. She was diagnosed with Breast cancer a month prior to my diagnosis. A was there in big waiting area, waiting to be beeped for her chemo as the chemotherapy treatment clinic was also running very late.

We chatted about our eyebrows (or lack thereof ) , dark painted nails , diets & cancer food and positive ways of coping , as you do... In the 'quiet 'crowded waiting room I'm sure everyone was aware of us.


Not everyone looks sick , though you can easily spot the cancer patient from carer usually by the head gear or the ones gently guiding frailer looking older people . Some people talk in hushed voices, guarding their 'personal' and emotional space. They just stare ahead at the TV, their phone or iPad or old magazines. Styrofoam cups of tea, coffee and 'plastic' biscuits are available if you like.

Sitting there you feel such a strong range of emotions ; anticipation, anger (One lady was very 'agro' because the clinics were running so late) , hope, sadness, even boredom ... mirrored in the sea of faces that surround you. Though now the chairs are banked, fixed in rows and close together instead of around the walls you don't make so much eye contact.

This morning I was feeling down, as well as tired and cold (yes it's blowing a gale with wild weather here as everywhere). I'm grateful my SIL who minded our little boys, at the other farm due to our late return, was putting them on the school bus.

I couldn't summon the emotional energy to get up. I'm don't exactly feel depressed, in fact  I feel physically better this week. Some days are better than others. I think it is returning to the Dr's office and talking about cancer that reminds me of my diagnosis and the interruption that cancer has caused to our life.


We also visited our old home for 15 mins , it's empty (tenants vacated), while still filled with memories ...not to mention clean carpet, my big kitchen , my roses , a lush green lawn and our old life.I still love the farm, our 'homely shed' and living here. Just sometimes it feels lonely and isolated here. I miss my friends.

Eventually, I stumbled out of bed at 11:30 am , only after my darling hubby made me tea and toast in bed, then lit the fire and went off to borrow firewood from the neighbours ; ).


 

I happened upon this song - I like it ! GET UP !

I'm a bit fired up now by the song and the fire.Though going back to bed is still inviting ...did I mention it's cold , grey and blustery and my hammock is like a parachute in the wind. 


Do you ever feel like you just want to stop and catch your breath ?
Would you like to hit pause, lay low and stay in bed all day ?

Comments (21)

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I totally have a case of wanting to stay in bed today. I feel drained and worn out and I just don't want to play the game anymore. Well at least not for today. For today I want to curl up and forget about it all. Sleep for what would feel like forever and possibly wake in the morning feeling fresh and ready to start the day.

That is a great song as well, thanks for sharing. Fairy wishes and butterfly kisses lovely
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1 reply · active 659 weeks ago
I hope you get your wish Rhianna. xo
For the life of me, I cannot understand why the doctors couldn't tell you stuff over the phone..ten hours travel when you're not well is beyond thinking about when it doesn't have to be necessary!
I have actually occasionally gone back to bed. Recently, I was dog tired, got the boys out of bed so that they could go to work and uni..had brekky and then went back to bed for two whole hours. I felt much better..hehe!
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2 replies · active 659 weeks ago
Those 2 hrs were worth it I bet Carol.
I know we missed one other appointment and changed the 3rd review appointment to the day before my last chemo ...since we came down earlier .
I understand why they need to see you in a way. The Oncologist stated at our first visit - we could arrange to see them the day before but then the appointments were not made that way.
PS I was thinking of you the other day Carol - I found the lovely apron I won - it had been packed away when we moved .It was MIA in a tetris of boxes/linen stuff. I'm going to wear it often now - it's such a cheery fabric.
Hitting pause and laying low sounds very attractive. Trish, I think you are amazing xx
1 reply · active 659 weeks ago
I'm not really amazing but I know my husband is.
This is how I felt today. Just no motivation to stumble through another day. And then I come here and read this and feel guilty. With all you are going through you still manage to "get up" I admire you trash, you inspire and motivate and fill me with the deepest appreciation of the little and the really big things. xx
1 reply · active 659 weeks ago
Oh please don't feel guilty Larissa , we all have difficult days and runs of them that exhaust us.
Curling up in bed and hiding there sounds great just about now...but what do I have to complain about, when you travelled 10 hours to see a doctor for 10 minutes. You're amazing! And those old roses of yours are gorgeous!
1 reply · active 659 weeks ago
We had something important to take care of fortunately that fitted in.
I'm just grateful the next 12 weeks are local for all our sakes.
I really miss my roses , going to try striking a few more of them from cuttings.
Katie had her 6 monthly check up a couple of days ago, Its a shitty reminder to us all that she has a sucky Complex CHD, most days I can just pretend life is normal.....she is normal.......I can forget that she is in a time clock......tick, tick, tick.......I hate going to Clinic, I sit there watching families with tiny babies come in and out with tears in their eyes and I know the pain.......the path, BUT I also know the beauty, the amazing people the will meet the amazing kids they will grow to love, cherish, adore, and I want to hug them and tell them you get stronger, you get tougher and you get though it.
Trish You are strong, you are beautiful and you inspire me to look ahead with joy......with hope and with a loving heart.
Snuggle in that Bed if you want, Swing in that Hammock as much as you like, but always make sure you Get up.......We love you Trish xxxx
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1 reply · active 659 weeks ago
I think it is seeing others in the clinic too , that reminds us we are not alone.

I wish Katie everything , Nicki - she is so amazing and so blessed to have you for her mum.
thank you, Nicki - you inspire me xox
You are so freaking fabulous, even when you are feeling down you sound positive.

I love you for that.

X
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1 reply · active 659 weeks ago
Thank you gorgeous , you make me laugh even when things are crashing around you too. xo I love you back mwah.
I was going to say the same thing as Kelley - you manage to find the positive in every single situation, and that's amazing! Love the song, but I can relate to the desire to stay in bed all day, too.
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1 reply · active 659 weeks ago
You have a big excuse Tat too want to stay in bed, the last days of pregnancy are draining and exhausting. thank you xo
Well Trish I think you are entitled to stay in bed and have a bit of doona time too. You have a wonderful positive spirit even though you may not feel so at times. So glad that now you wont have to travel. That is a hell of a long way to be driving back and forth and an interruption to your life. Glad that bit is over. And your roses are just divine. Hope you get to spend some time in your garden - what a healer the garden is. Take the best of Care.
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1 reply · active 659 weeks ago
My garden at the farm is slowly coming along and my hammock is smack in the middle of it
I only have a few roses in pots here.
I am glad the travel is over , more for the kids and hubby.
Thank you Lilly for the parcel of kindness - I'm resisting opening them all at once :)
Trish, darl, you don't have to feel depressed to be depressed. Depression can drain your will to live. No, I don't mean as in 'I want to die', I mean as in 'nothing interests me any more'. Life can be passing you by, and you don't care. On days like that, you can lose hours just staring into space, not even caring enough to brush your teeth. You don't feel sad, or angry, or anything at all really. Just empty.

I hope that's not what was keeping you in your bed, Trish. Hopefully it's just a one-off emotional/physical tired spell after your long trip. Thank goodness you've finished the first stage of your unpleasant journey, so you won't have to do the Sydney trip any more. But if you do think you might be suffering from depression, see someone straight away, won't you? Or at least visit one of the many depression websites. You of all people deserve to be happy.

Big hugs, Trish. Congratulations on getting through the long-distance phase of your treatments. LYLT.
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1 reply · active 659 weeks ago
Thank you Catty ,my GP asks me every time I see her.
I'm okay for now, it was just a down day.
I'm keeping an eye on how I'm feeling day to day and I will ask for help. I am glad my interwebz friends keep me grounded and uplift me too.

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