Wordless Wednesday : Despicable Me

Guess who brought both iPad and Mini to Sydney ...much to his twin's - that was despicable - he did it on purpose attitude TOO.

J had 5 days with just my old iPod. Anyway, this Cheeky Minion had a Neurogenetic Clinic appointment at Westmead - for annual Neurofibromatois review. We encountered this big Minion in the corridor. Sam wanted this picture ! It is so HIM.

An InLinkz Link-up

 ♥

Up and down , Get up !

Yesterday, was a very long day we left home at 6am to travel to Sydney for my last review appointment. We arrived home at midnight. I felt for my husband.

Up and down the emotional rollercoaster the highways and by-ways is physically, emotionally and mentally exhausting - the round trip is 700km /10hrs... I wasn't driving. It's a relief my next treatments will be 15mins from home. 

The Oncology review clinic was running 2hrs late - we exited our 10:45 appointment at 1:30pm. We saw Dr #1 at about 12:45pm for 10 mins, then waited 15 mins in between to see the Oncologist for 10mins.

It was all good with nothing new to be learned. They don't even examine me. I'm not not complaining , just saying I'm glad we had another reason for the trip down to Sydney.

When you arrive you wait in big 'muster' waiting area before being 'drafted' in smaller waiting rooms down the corridor or waiting for your beeper to go off saying they are ready for you in Chemo or in Radiation.

I'm  a little bit thankful appointments were late, because I got to briefly catch up with my 'old playgroup' friend, A. She was diagnosed with Breast cancer a month prior to my diagnosis. A was there in big waiting area, waiting to be beeped for her chemo as the chemotherapy treatment clinic was also running very late.

We chatted about our eyebrows (or lack thereof ) , dark painted nails , diets & cancer food and positive ways of coping , as you do... In the 'quiet 'crowded waiting room I'm sure everyone was aware of us.


Not everyone looks sick , though you can easily spot the cancer patient from carer usually by the head gear or the ones gently guiding frailer looking older people . Some people talk in hushed voices, guarding their 'personal' and emotional space. They just stare ahead at the TV, their phone or iPad or old magazines. Styrofoam cups of tea, coffee and 'plastic' biscuits are available if you like.

Sitting there you feel such a strong range of emotions ; anticipation, anger (One lady was very 'agro' because the clinics were running so late) , hope, sadness, even boredom ... mirrored in the sea of faces that surround you. Though now the chairs are banked, fixed in rows and close together instead of around the walls you don't make so much eye contact.

This morning I was feeling down, as well as tired and cold (yes it's blowing a gale with wild weather here as everywhere). I'm grateful my SIL who minded our little boys, at the other farm due to our late return, was putting them on the school bus.

I couldn't summon the emotional energy to get up. I'm don't exactly feel depressed, in fact  I feel physically better this week. Some days are better than others. I think it is returning to the Dr's office and talking about cancer that reminds me of my diagnosis and the interruption that cancer has caused to our life.

We also visited our old home for 15 mins , it's empty (tenants vacated), while still filled with memories ...not to mention clean carpet, my big kitchen , my roses , a lush green lawn and our old life.I still love the farm, our 'homely shed' and living here. Just sometimes it feels lonely and isolated here. I miss my friends.

Eventually, I stumbled out of bed at 11:30 am , only after my darling hubby made me tea and toast in bed, then lit the fire and went off to borrow firewood from the neighbours ; ).


 

I happened upon this song - I like it ! GET UP !

I'm a bit fired up now by the song and the fire.Though going back to bed is still inviting ...did I mention it's cold , grey and blustery and my hammock is like a parachute in the wind. 


Do you ever feel like you just want to stop and catch your breath ?
Would you like to hit pause, lay low and stay in bed all day ?

♥

Sticky Fingers and Sour squirms

I have learnt to live with the stickiness of my little munchkins fingers - over everything. Then there is the constant exploring of all things with buttons .

So now all the finger marks are higher and they can reach more things.Sadly , his crawling days are almost behind him ... my babies are now fully fledged toddlers.

S & J love of pressing my buttons hasn't diminished ... the television (but they don't watch it -only to press the buttons on/off) ,remotes, dishwasher , the front loader and my mobile phone. OM gosh the tantrums when I refuse to let them have it or if one happens upon it ( they look for it now too) and the other tries to snaffle it ...

Today, I thought I had lost my mobile phone. My eldest DS and I were looking everywhere.I was ringing the number but we couldn't hear it. I had just been to the post office to collect a parcel (tell you about that tomorrow). I phoned the Post Office via the stupid 13 number ... after they made me press 50 buttons I finally got to speak to a person and then after another 20 mins got transferred to my local PO. Then waited while he apparently went looking for it. Nothing. So we looked again and DS found it - where I told him it was all along.

During the day my husband had also called the land line (house phone) and I wondered why ... and why I missed a few other calls. O'Duh ... The phone was set to silent ...thanks J - he has a real knack at working those buttons. I have to learn the key lock feature or keep it out of reach and to leave DH or DS number as last calls so if he calls them it won't cost me.

S is now more confident with walking and even more so climbing. Saturday night he pushed the dining chair over to the kitchen sink stood on it and looked as if he was planning to wash the dishes when he reached for the dish washing liquid.... good training. It was very funny and cute - he was grinning as if to say I am very clever.

I discovered my little S loves sour tastes ... yes he is the one who won't eat real food ... one day it was lemons, cumquats and today it was sour lollies called squirms (jelly worms with sour coating)

We had a eye appointment checkup for J at the children's hospital. When I get J out - S raises the roof and wants out too. I was prepared today.

The face S makes is priceless when he eats them , and I made sure I saved a few of them. The sticky fingers and the quiet were worth it. He was very good today ...once I gave him the squirms. J's eyes were all good too. Next appointments for their eyes is March.

I am going to buy a bucketload of sour lollies tomorrow. They are from Natural confectionery food company people in case are wondering about the artificial colours and flavours - nil. They are yum. My Mum loves sour worms too.

This boy takes after me ... he can smell the chocolate a mile away too but he really only likes a little taste (that's all he is allowed LOL). J wanted a squirm too but he isn't as fussed on the sour stuff.

I also must pick up some real toothbrushes for S 's 4 teeth if I am to break my rule about never giving them lollies /candy etc .... oh well I tried. On the tooth front J is also cutting another top tooth (#6) and tonight he wanted a lot of lovin'. Poor Bubba