Showing posts with label whinge. Show all posts
Showing posts with label whinge. Show all posts

Friday, 4 April 2014

The C word and marking time.

My life is marked with big medical events on the calendar ...but at the same time not.

The perils of being at the mercy of public health system. (I might add a great system when it works in your favour. The local base hospital were prompt to treat and drain my haematoma , by ultrasound -twice this week.I am very grateful)


Yesterday, one Sydney hospital called to organise my PET scan - first I needed the dates for when my radiation would be starting and finishing. The PET scan needs to be 12wks after I finish radiotherapy - though the Radiation oncologist wanted me to have it in 2.5 months time ???

Um *$#@ !

I called the Radiation unit where I have radiation [2hrs away] - no dates yet, no deal and instead of 4wks I was told - it might actually be 

6wks before I start, 
+ 6-7wks of radiation - 

add 12wks recommended wait after I finish radiation (due to inflammation)
 =25wks
They weren't able to give me much information , too early in the process.
 
So ? almost 6 months before I can get the PET scan.
Um *$#@ ! , *$#@ !, *$#@ !

It will be eight months since I was diagnosed, 7 months since the Chest CT showed things we weren't expecting ...the nodules on my lungs and lesion in my neck ? maybe my liver. 

The PET is supposed to monitor them and check for growth or NOT; it probably can't tell if Breast cancer or Sarcoma related ?

I re-called the PET suite, while I was on hold they rang one doctor (Not THE Dr I saw 2 weeks ago-she is away) and he said they could do it 6wks after I finish radiation.The lovely lady was 'confused' and is going to follow it up further.

Still till long.
Still too scary.
In six months a lot can happen.
I don't even want to think about it.


Today's quote

“The best thing about the future is that it comes one day at a time.”
― Abraham Lincoln

Enjoy each day and dwell not so much on tomorrow -
because if I worry think too far ahead my heart will break. !

So I am taking things one day at a time, it is the logical thing to do and worrying isn't going to hasten the process.

Cancer is a process, like all disease and illnesses.

In cancer we're always marking time , making decisions or being subject to decisions.
There are choices to be made, different treatments, many impossible possible options, with breast cancer and especially now with sarcomas. Different doctors have their own demarcation lines. It sucks they can't agree.

Waiting is *$#@ !* it is difficult to not let things get to me. 
Cancer (twice in 21 months) is a haunting situation; it feels like I will never ever relax again.

In happier news in the last few days many kind words have uplifted me, the Nurses at oncology, a few friends and church acquaintances, receiving in the mail :a daily devotional book from my SIL, several card (from the same friend) and a little peaceful thoughts kit and purple butterfly ring from a lovely blogging friend.

 ♥

Saturday, 28 November 2009

Boring

I have the feeling that my boring posts have left me with only two or three readers.

You know I'm just curious whether it is true or not ?

Please raise your hand in comments if you still check my blog ...or don't bother if it is a bother. I am just writing this because ...

NaBloPoMo is almost over .

The holidays are coming so you can breathe a sigh of relief ...shh don't tell my DH I am taking my laptop and mobile broadband.

Even though I'm doing boring posts I have plenty to say just not sure how to articulate a few things...without revealing too much or being a whinger.

Some difficult days are upon us ...I don't mean that I have yet to write even one Christmas list or write the medical appointments, preschool concert, relatives visiting dates on my calendar.

By the way where is my diary ?

Seriously if I had more than 10 mins I would write up my Honest scrap post ...I've just been busy placating all the males in my household and ...oh it doesn't matter !

PS I googled boring ...thanks Wikipedia
~ the expression to be a bore had been used in the sense of "to be tiresome or dull" since 1768

♥

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