My Little Drummer Boys: Sarcoma Update ~ There was a knock at the door - Aye Aye

Wednesday, 9 April 2014

Sarcoma Update ~ There was a knock at the door - Aye Aye

Youtube and Facebook have been keeping me amused when I wasn't having my leg drained x 3 times x 70+mls each time.

There wasn't a knock at the door ; actually , the phone (twice) rang after a 10 day wait.

First , at 12.09pm I received a call from local, gangbusting Cancer Care Nurse who said the Radiation Co-ordinator/Planning lady will call me either later today or tomorrow - once she tee'd up a DR to be at the Radiation Planning appointment...

At 12.46pm ~~Sitting on top of the phone~~ Feeling glad I wasn't forgotten and practicing patience; She CALLED ME ; JOY. She was stellar.

My planning appointment is next Wednesday and I'll start radiotherapy 28th April; 30 treatments over 6-7 weeks.

While I'm still feeling a bit overwhelmed (or I also prefer dazzled as does my dear friend Kelley) and tested on many levels , I'm beyond relieved we have a plan.

I haven't been running because don't want to stir up my leg - it seems to be settling with tight compression. NO more weekday paddling *sob* with the change from daylight savings

Now, I have to get our tax finished and get everything in order.

"I run because it's so symbolic of life. You have to drive yourself to overcome the obstacles. You might feel that you can't. But then you find your inner strength, and realise you're capable of so much more than you thought." – Arthur Blank

I am so thankful for the local Cancer Nurse who was liaising for me and my 'crackerjack' Breast Cancer Support Nurse still advocating for me. She is a dragon boat paddler too.

I'm immensely thankful for the team who will be doing the planning and for people praying for me and those sending me emails and messages saying they had been following my blog and I have been in their thoughts.

It’s really hard to put into words how grateful I really am.

What are you thankful for today ?

Thankful Thursday with A Parenting Life

♥

Comments (33)

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Lisa@RandomActsOfZen · 570 weeks ago

So glad to hear there's a plan underway Trish! Thinking of you lovely xx

1 reply · active 570 weeks ago

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havealaughonme 84p · 570 weeks ago

Another 'marathon' for you to take part in Trish, I suppose it's nice to have a plan in place. All that draining sounds very painful :( Hugs x

1 reply · active 570 weeks ago

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alicia · 570 weeks ago

The aye aye is sure a face only a mother could love! Wierd about the finger lol, very amusing :) Good luck with your treatments xx
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1 reply · active 570 weeks ago

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Mum-me · 570 weeks ago

Thinking of you and keeping you in my prayers, Trish.
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Sammie · 570 weeks ago

So pleased things are moving forward - I think action in the right direction always makes it feel better. I know exactly how you feel about the running. The time when you need to get out there the most, and you can do the least. Just remember all good things come to those who wait, and in the meantime, imagine how good it's going to feel when you finally do get out for a run!
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1 reply · active 570 weeks ago

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fivedegreesofchaos 55p · 570 weeks ago

Yay for dates and plans, it's always easier to manage when you have things ahead to anticipate. The waiting and the unknown is horrid.
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Me (Linda) · 570 weeks ago

YAY for a plan in place. I know how 'draining' it can be waiting for a plan to be put into place and I know how we worried while we waited to hear Dad's plans when he has needed them in the past.
Sending lots of big hugs and positive energy your way - you truly are an amazing lady !!
Me xox
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1 reply · active 569 weeks ago

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ann · 570 weeks ago

Aww I love the aye aye!!
Glad things are moving in a positive direction Trish.
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1 reply · active 569 weeks ago

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Pinky Poinker · 569 weeks ago

There are plans in place to make you all better! You're a brave girl and your courage will pay off I'm positive. Aye aye reminds me of someone and I can't quite place it. I can see why he cheered you up x

1 reply · active 569 weeks ago

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@BeyondBarbi · 569 weeks ago

All the best, hopefully things are looking up now, onwards and upwards!!!! xx

1 reply · active 569 weeks ago

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aparentinglife 57p · 569 weeks ago

So so pleased to hear that your waiting has been cut down a bit and you know have a bit more of an idea of what will happened when. Sending so many fairy wishes and butterfly kisses your way lovely lady xxx Thanks for joining in with #thankfulthursday
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1 reply · active 569 weeks ago

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teapotsandtractors 55p · 569 weeks ago

I don't know that I can see the Aye Aye as cute! Glad to to hear you have a plan...and I like the word dazzled too. xxx
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kyl21z 63p · 569 weeks ago

So glad to hear that things are moving and you have people that are on your side and getting things happening for you. It's one small thing less to worry about. xxx
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mamagrace71 77p · 569 weeks ago

Amen to plans, Trish! We're behind you all the way.
As for the Aye Aye…what a very strange creature!
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leeannewalker1 55p · 569 weeks ago

That Aye Aye made me smile (reality is stranger than fantasy!)

Sending lots of karma your way for the plan. :)
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1 reply · active 569 weeks ago

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Kelley · 569 weeks ago

HUZZAH!

And stop showing me that damn thing... I am completely dazzled by it! ;)
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jessnewman877 75p · 569 weeks ago

So glad you have a plan and a great way to move forward Trish xx
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Sam Stone · 568 weeks ago

Go glad that you have a plan. Today I am grateful for that.
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