Thursday, 21 August 2014

Mesothelioma - takes your breath away.

I am often asked to share cancer and medical stories. It's information sharing and part of being in a community. This story about mesothelioma really touched me and the message may be life saving.

Cameron Von St James emailed me this week. 

Heather Von St James.

Three months after welcoming her beautiful daughter Lily into the world, Heather was given 15 months to live. The removal of her left lung and multiple treatments saved her life, and 8 years later, she has beat the odds. Heather is one of the very few survivors of this cancer and her family has dedicated their lives to spreading awareness of it to keep other families safe. 


The Mesothelioma Cancer Alliance has dedicated a significant amount of time making http://www.mesothelioma.com/ the best resource for those who want to learn more about or are affected by mesothelioma.

They hope that with a successful campaign they can bring awareness to this completely preventable disease.  Though if you have already been exposed - ensure you seek information from your health professional.

Mesothelioma is an aggressive cancer affecting the membrane lining of the lungs and abdomen. Malignant mesothelioma is the most serious of all asbestos-related diseases. The primary cause and risk factor for mesothelioma is exposure to asbestos.

I clearly remember about 12 years ago my father's friend writing to him to advise him and other colleagues to go get checked for Mesothelioma , as he had just been diagnosed and had a poor prognosis. They had worked together in an industry that used asbestos.

My husband alleges he had some exposure to asbestos playing in broken 'mounds' of it as a young child near his father's business and probably as a tradesman. Unaware of the dangers. Scary, scary stuff.

Australia was one of the highest users per capita in the world up until the mid-1980s. Approximately one third of all homes built in Australia contain asbestos products. The widespread use of asbestos has left a deadly legacy of asbestos material.

Who hasn't heard of Bernie Banton ?


...takes your breath away!

In Australia ,The Bernie Banton Foundation is about asbestos awareness, education and advocacy. It is an Australian not-for-profit organisation that aims to make a difference by helping to alleviate exposure to asbestos, in the hope of eventual eradication of asbestos related disease!



Additionally , they offer support and comfort to sufferers and their loved ones.  More info on treatment http://www.berniebanton.com.au/mesothelioma-treatments

More info here http://asbestossafety.gov.au/asbestos-information

I'm curious have you heard of Mesothelioma ?


 

Comments (7)

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I have heard of it Trish & I find it very scary that a product that was so widely used can cause such a devastating condition. It makes me wonder too about the products we are using today, what health implications will they hold in the future. My Pop (75) who worked with asbestos was told he has something in his lungs from asbestos exposure but thankfully it is slow growing & won't impact upon his lifespan.. Still quite worrying just the same. My Husband & my Uncle have both mentioned breaking asbestos throughout their childhoods & my Mum used to do quite a lot of work on our childhood home (my home) unaware of the asbestos!
Thank you for the story Trish, many people wouldn't always be aware x
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I'd heard of it, but didn't know it as Mesothelioma. It is scary stuff.
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Terrible disease - and as you say, so many were exposed to it for longer than they knew. Heartbreaking.

It is wonderful that this lady survived and is still here to talk about it.
Thanks for the post Trish! I knew about this form of cancer but not its proper name. Scary!
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Oh I love this lady's story... thanks for sharing. I love how she lives through rose colour glasses and refuses to never take them off. x
I knew that there was a cancer related to asbestos but wasn't sure what the medical term was. Thanks for bringing it to our attention. Heather's story is an amazing one and so very inspiring. x
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Yes , a friend of ours died of it , he was a tradesman. ...as you say many families have been touched by cancer. My sister currently is battling brain cancer. It is terminal and surely will end soon. Cancer is tragic as are many illnesses.
Thank you for putting it out there.
Alexa from Sydney http://www.Alexa-asimplelife.com
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