Thursday, 12 June 2014

Serendipity becomes Zemblanity and an Update.

Firstly, HOORAY ! I just finished my last #30 radiation treatment to my left thigh.

I'm so thankful for this chapter to be over.


Thankful, to be going home (tomorrow night) to my cherubs.


OMG , they turn 8 in 3 wks
 Thankful , my DH arrives tonight to comfort and calm stay with me, then drive me to Westmead tomorrow for the Pet Scan.

Thankful, though my inner thigh is red and slightly sore - The Prof said it looks good.  
While some days it feels like life is spiraling out of control , I long for days when something GOOD happens so that I can take a step back and see things more clearly.

As much as it is a cause for celebration , tomorrow is my Pet Scan.
I'm also feeling gutted for a friend. 

Though grateful that I will be followed up , to pick up recurrence of disease while it is still treatable ; if not curable. My life , forever after marked with medical events on the calendar. 

No path is so clear, No step is so easy

In certain cancers patients are left to determine a follow up schedule for scans (or none till they have symptoms) in agreement with their oncologists /medical team.  There is no denying it ; we are always cognizant of the long-term risk for relapse with any cancer vs the risks and benefits of frequent scanning. 






William Boyd coined the term zemblanity to mean somewhat the opposite of serendipity: "making unhappy, unlucky and expected discoveries occurring by design". A zemblanity is, effectively, an "unpleasant unsurprise".wikipedia

Oh my friend ...I didn't see that coming.

Yesterday, the Radiation team called me to have my radiation treatment 2hrs earlier (they were ahead of schedule). I finished and exited the side door , got to the end of the pathway and realised I forgot to stay for my appointment with the Professor (Radiation Oncologist).

I went back in the front entrance to Radiology and saw my friend , with her friend. (My friend who was diagnosed 2.5 yrs ago with Breast Cancer). Immediately, I noticed her red rimmed eyes and tear stained face. I inquired about her elderly mother who I knew had also been recently diagnosed with Breast Cancer ...my heart sunk as she shook her head.

Unable to speak , she motioned for her friend to explain. After an MRI on a painful hip - the report was concerning , possibly her cancer has metastasized to her hip. She waits,  for more scans tomorrow, then to see the Prof. 

If it is what it is ... we both know it's a tough journey again.

If I hadn't have been called in early or even if I hadn't forgotten my appointment, I wouldn't had seen my friend ; no knowledge of the storm in her midst . The silver lining is , now, I can support her, as much as I'm able.

Negative thinking is unfortunately always a part of life after cancer , even when we go about it without thinking too much about it.

Before we know it , the next appointment or scan is here or we have a new symptom.

Scanxiety !

Even when or if we think we have nothing to worry about. 
It nibbles at the edge of our fingernails.

New symptoms are generally taken seriously in cancer patients even several years out from diagnosis.
Mind games ; I don't want to talk about. 

So overwhelmed by challenges, the bumpy road we have to travel - a cr@ptastic detour. We do our best to carry on normally. There are miles to go before we can feel reassured... there is no way out but through.
We each hold all the moments of our life in our grasp and what we make it of determines who we are. Every day we hold opportunity or excuses.  
So much I want to scream & shout ; really what is the point... A tumble of feelings that pile up.
Too many feelings to mention, plus there is a  caged high fenced off building 100m away. 

All joked aside. I feel like I am crumbling , the scanxiety is overwhelming for both my Friend and I, no doubt our spouses. I remind myself - 

He does not lead me year by year,
Nor even day by day;
But step by step my path unfolds,
My Lord directs my way.
 
Tomorrow’s plans I do not know;
I only know this minute.
But he will say, “This is the way,
By faith now walk ye in it.”

And I am glad that it is so,
Today’s enough to bear;
And when tomorrow comes, his grace
Shall far exceed its care.

What need to worry then, or fret'
The God who gave his Son
Holds all my moments in his hand
And gives them one by one.

Source unknown

Even if I knew that tomorrow* the world would go to pieces, I would still plant my apple tree.   I saw this somewhere yesterday on Facebook !

 May we all be strong, courageous and kind to each other xxx

PS - My husband & I will celebrate quietly over dinner date tonight.

*I won't get any results till Tuesday

 Tell me something good or happy you have experienced this week ?

Comments (13)

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Eden once wrote that cancer is like a shadow, once it touches your life, you kind of take it around with you forever and I kind of agree. I always think the build up to the tests and the waiting for results is the worst bit. My good news this week is your good news actually because you have finished your radiation! I'm so happy for you that you can get back to real life, your real home and your real loves, and just take one step at a time. First things first, enjoy your love night! xx
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1 reply · active 564 weeks ago
Thank you Sammie. One step at a time. I know Eden is a wise lady.
I thinking happy thoughts for you tomorrow.
The worst is knowing there is actually something and not what it is or isn't.
I think it so great that you are sharing your cancer process. It is all new to me, as I'm sure it is to many, and I find it a great insight to learn and understand your experiences. I am thankful that you are so positive.
It was Martin Luther King that said he would still plant his apple tree. It is a sign of such hope. Even if I know things are going to go wrong, it would be wrong for ever, and there will be good within the wrong. xS
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you continue to astound me with your ability to just keep going. And with a smile on your face.

You are truly wonderful.

x
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Well Trish, the good thing that you asked for is that this week I had a very positive performance review at work and got the largest raise that I have ever gotten in my 14 years working at the company. My boss even thanked me for the value I bring to the department...It's feels kind of shallow.

I'm happy that the radiation treatment is over for you now. That is so good to hear. But reading this brought tears to my eyes and I don't even really know you, or your friend. What you say about zemblanity and scanxiety are so true. Always afraid that having the scan will cause more cancer and afraid at the same time of not catching something bad.

Last night I was raging against cancer because my arm had swollen to three times it's normal size and hurt. Hearing about your friend puts it all into so much more of a proper perspective. I am so sorry to hear about her.
My goodness Trish, what a bittersweet way to end your treatment. I bet you can't wait for the weekend. And yes here is always being nice, strong and courageous to each other, wise words. You are in my thoughts, as is your friend. Hugs and strength lovely xx
Waiting, everybody is just waiting. But don't we all hate the waiting. Whatever it is we are waiting for.

Enjoy being back with those cheeky boys. xx
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Wow - there is nothing I can say that isn't diminished by this post (and I am thankful for that). Your attitidue is amazing.
I had no idea you were dealing with this, Trish (how did I miss it???) This post was beautiful, but heartbreaking at the same time. I'm going to use that word—Zemblanity—hopefully not too much, though! I feel so bad for your friend and for you and your family. It could happen to any of us at any time. Life is so sacred, yes? Kx
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Well you know I'm the praying type and you have been in my thoughts and prayers Trish. When I sing the worship songs at church each Sunday I pray for you. Not sure why I remember you then but your name pops in my head. I can understand the negative thoughts that can run rampant in your head after you experience cancer, but I think your attitude and outlook is positive and you can calming go to the PET scan tomorrow knowing you have an army of family, friends and bloggers who support you and love you and wish and pray for the best results for you so that you can enjoy life with your husband and boys with no worries.
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Just reading this post was like a roller coaster! I hope your results are the best they can be, and hopefully, your friend's mum gets some good news, too. As always you inspire me by managing to find gratitude and faith in every situation.
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Oh Trish, this brought tears to my eyes! I am so glad you have by now been home with your boys for nearly a whole week, but sad for your friend, and for the uncertainty that life after cancer brings.
That verse reminds me of a hymn we sang often in church (possibly derived from Isaiah 41:10) when I was growing up, the words of which came to me out of the blue when I was in hospital contemplating the uncertainty of Rosalia's future. I later discovered it was played at the funeral of my great-aunt after whom Rosie is named, though I couldn't possibly have known that as I hadn't attended her funeral due to being pregnant. A sign perhaps? It certainly filled my soul with peace.
"Be not afraid, I go before you always, come follow me and I will give you rest."

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My thing of beauty today was seeing a monarch butterfly feeding on my lavender hedge. A fragile thing of beauty blown way off course down to the cold of winter here in Sydney. It wasn't tattered and weary but full of colour and beauty . It stayed awhile till it whisked away in a breeze over the fence.
I'm sorry for your health burdens and of your friends too. X

Alexa from http://www.Alexa-asimplelife.com

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