Thursday, 19 June 2014

No one told me ...


No one told me that my good enough for now news on Tuesday , would be diminished by my sadness for other friends who didn't get the news they were hoping for.  They face many stumbling blocks in the next few weeks and months.

I can't celebrate for fear of the jinx, though we did have a great celebration last night for the biggest Drummer Boy's 21st Birthday. I forgot to pull out all those embarrassing photos (I honestly had no time to search for the hard copies being a pre-digital child) ...though Sam found a big pink sash 21 today, with tiny flashing lights - 50c at an Op shop.


Cheat's Drum cake.


No one told me that four months days at a time would be swallowed up. How can it almost be July ?

No one told me that life can still be lived well, despite having cancer (twice)- YES - I have to make it happen and find the silver linings. Look with my eyes wide open and see how incredibly wonderful it is despite cancer.

The value of living each day to its fullest, not putting off until tomorrow what you could do today. After all, one day, there will not be a tomorrow.

No one told me that cancer creeps into every single part of your lives life ; for the rest of life. Every pain , every ache will be a cause for concern and the days and weeks leading up to 6 monthly scans or oncology appointments will slay you emotionally  ... both of us.


No one told me that getting on with life after cancer - twice - would be this hard. How do we go back to normal and pick up the broken pieces ?  Normal ; is still under construction , like the shed.

No one told me that though my children are happy with boundless energy and seemingly resilient - deep down I know they are just as fragile. Too young to quite understand exactly what cancer means , old enough to know that both their parents have undergone serious medical challenges.

Four years of their lives (half in fact) we have been on this rollercoaster. This site - I discovered today Jen Singer’s Parenting with Cancer is a great resource for parents who have been diagnosed with cancer and still have to carry on with life and raising children. This article particularly on Children really aren't that resilient.

No one told me that though my husband has always been caring and patient (to the best of his ability) - not all men are.  I know that his patience is not limitless and he have had some tough times in the last 2-4 years. I'm so grateful for him.
Not all relationships are left unscathed - this article resonates with me - Cancer and my marriage.

No one told me , nor did I expect , he would be left basically alone. Few of our extended family members live near us (mostly 4+ hours away) , others were were away on holidays - while I was away for the last 7-8 weeks. There wasn’t anyone to give him a break for any length of time , though people from our church did provide a few meals a week. When I came home on the weekends I felt the pressure to do absolutely everything I could to ease his burden. It wasn't so much a crisis but an enormous strain for both of us.

No one told me how thankful I would be for the limitless websites, organisations and people that help us through vulnerable times and hold us together . All interested in bettering the lives of cancer survivors and their families.

No one told me fundamental human kindness supersedes everything.

Now I've told you ...go slay them - with kindness !




 

Comments (15)

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This is a beautiful post. I read you all the time with the utmost awe and respect for your bravery and resilience but I often just don't know what to say. So I won't say anything... I just wanted you to know I'm listening x
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I too have found myself overwhelmed by the kindness of others this week, it truly is a wonderful thing to be thankful for. Happy birthday to your big boy!
My recent post Counting My Blessings
You can celebrate, small moments, small wins. AND big birthdays. Happy 21st to your boy!
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I am speechless. I don't have any words. I am in awe of your experience. Thank you for joining me for #thankfulthursday
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I can totally relate to this post, Trish. It's so real and so beautifully written. So much of what you say resonates with me, and you're right, no one tells you this stuff. Even if they did nothing would prepare you for everything that you have to experience. But you forgot one thing, no one told you how brave and courageous you would be and how you would rise above it all, and become stronger and more empowered because of it. I always think cancer casts a shadow over the lives that it touches but I like to follow the words of Walt Whitman, "keep your face always to the sunshine - and shadows will fall behind you." So many silver linings for you and yours. Enjoy them lovely lady! You deserve all the happiness!
My recent post Wednesday Words of Wisdom – Ralph Waldo Emerson
This is beautiful - thank you for sharing. xx
Oh Trish, I have no idea what to say. Thank God that his mercies are new every day, and that he redeems in bucket loads what has been stolen from us. Xxxx
I wrote 5 things before I left this comment.. in the end I leave with... ditto, what Jess says above...
xx
You are an amazing person, who resonates kindness, that you took the time to leave comments on my blog and FB page during our recent bereavement while you are undergoing your own personal difficulties is testament to that, thank you. xxx
You are such a precious, inspirational lady Trish. xo
I really admire your ability to keep on keeping on. You're truly inspiring. I'd spent my morning in a bit of a funk about some ridiculously little things. Your post makes me remember that little things are just that, and there's so much more to focus on. I sincerely hope the roller coaster stops in the best possible spot, at least for a while, to give you all a breather.
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Such a touching post Trish.. the mental exhaustion you must feel at times must be so immense! Off I go to slay everyone I love with happiness and with a grateful heart!
Hey Lovely Trish, one of my favourite posts from you.
No one told me that being on the outside looking in would make me feel so proud of the strength that I feel when I read your posts.
No one told me that bad things happen to good people more than once.
No one told me that you feel guilty that you personally don't have cancer, yet guilty that others have to go through this shitty disease and there is nothing you can do about it except pray and stay positive.
No one told me that husband's are legends given the chance and that marriage is essentially about teamwork and kindness.
Happy Birthday to your son! xx
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