Tuesday, 12 July 2011

JulEYE and your child's sight

As you know my five year old,Sam, has worn prescription glasses since he was 20 months old.


We didn't detect a problem ourselves apart from the white eye reflection which I picked up in my photos when he was 11 months old. I was terrified *.

Sam has a genetic disease "Neurofibromatosis 1" - which can result in an optic glioma, his eyes were being already being checked (initially every 3-4 months) to detect them early if they occurred.

Fortunately while he hasn't had an Optic glioma , he does have myelinated retinal nerve fibres plus myopia (causing nearsightedness).
I still get photos with a white eye reflection - potentially a serious symptom of some eye diseases.

I know what Sam's is - myelinated retinal nerve fibres plus myopia - white fibres cover his lens. It has affected his vision though wearing glasses helps corrects this. I just hope he doesn't end up with a turned eye ('cross eyes' -like me) because when a child has vision issues that go undetected it can cause the brain to switch off that eye (like lazy eye).

It was only on subsequent visits they found he was longsighted in his other eye. I am glad we were having his eyes checked. Sam may still need a patch for one eye to strengthen his weaker eye.

When I received an email asking me to mention about JulEYE I immediately had to share it.

Why ?
Every 65 minutes, an Australian loses part or all of their vision – this may explain why one third of Australians list blindness as their most feared health condition alongside cancer. Yet the majority of Australians do not get their eyes tested regularly, despite the fact that 75% of vision loss is preventable or treatable. The Eye Foundation, a not-for-profit organisation, is once again encouraging all Australians to get their eyes tested in July as part of its annual ‘JulEYE’ campaign kicking off on July 1.


Each week of ‘JulEYE’ will focus on a different aspect of eye health. The third week will be focused on children’s eye health and encouraging parents to have their children’s eyes tested and be aware that vision problems are not exclusive to the elderly only and can affect babies and young children. 

As a mother,  who has faced such issues I wanted to share this.I am aware that is quite widespread in Australia.



Undetected vision problems are estimated to affect one in four Australian children. Parents need to be aware of the importance of children’s eye health and that regular eye checks are just as important to a young child’s overall health and wellbeing as other regular health checks, therefore, good eye health beginswith testing from birth. 

The Eye Foundation is asking all Australians - no matter their age - to get their eyes tested this julEYE, and place eye tests every two years on their family’s calendar of regular medical checks. 

AS parents we need to protect our children’s vision



Kirk Pengilly is the ambassador for ‘JulEYE’, as well Australian country artist, Lorin Nicholson and many other young, inspirational Australians currently battling eye disease.

The eye foundation would love others to mention this and help spread the word about this great cause!



For more information or to link to the Eye Foundation website please go to www.eyefoundation.org.au


They are also getting social this year so you can:

   Follow on Twitter- @EyeFoundation;
   Like on Facebook-  The-Eye-Foundation FaceBook Page; and
   Chat to them on their blog- EyeSiteBlog.com
*Everyone please note - white eye reflection is not normal and you should get a referral to an Opthamologist asap if you see it in your photos. It could be life threathening if left unchecked. 
 
PPS I can't stress enough how important sight is. I am almost blind in one eye for a completely different reason (head injury as a child at school with undiagnosed partially detached retina).I have peripheral vision but a huge blind spot in my central vision.

This is a non sponsored community announcement - because it is so important to me.
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Comments (13)

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I had no idea you could pick things up just by taking a picture. Thankyou for the information. Definately a topic i know very little about. Thankyou xox
Great post, Trish, and so important. My sister required patching and my mother had surgery for unpronounceable eye disorders. Even with surgery my mum's brain did shut down and she is legally blind in one eye with reduced vision in the other.
It's amazing what they can do for it all these days, but without that initial diagnosis, without people paying attention to little things they notice when uploading photos, it can be a much bigger problem.
1 reply · active 717 weeks ago
thanks Glowless. I hope your mum gets by okay. Early diagnosis is vital to prevent vision loss or minimize it.
Very informative post! My daughter's poor vision was picked up the nurse at school when she was in Prep and I actually felt silly not able to notice the symptoms. But I appreciate the early diagnosis so now she wears glasses during reading.
1 reply · active less than 1 minute ago
Joni, it isn't something you can notice easily until it gets worse - if you know what i mean. Glad Anya's was picked up by the nurse.
Thanks for the opportunity to read this Trish. Eye health is so important. I can't imagine your concern for your son.

I have two friends with serious eye conditions and they do so much, yet they struggle because it doesn't look like they have a vision impairment.

My Sophie was really unimpressed at her recent eye check up because she was told she has great eyesight for a six year old. She wanted glasses (a passing wish I am sure).
1 reply · active 717 weeks ago
Yes vision impairment is not as easily noticed as some other disabilities.
Glad Sophie was all ok.
Thank you for sharing this, what an important message. I'm going to re-post this to facebook :-)
1 reply · active less than 1 minute ago
thanks Kate. The message is important, I appreciate it and so will the eye foundation.
My cousin had the white reflection as a bub. In his case it was the rarest form of retinoblastoma (3 cases a year worldwide). In his case they treated it as the common form and he had 4 years of chemo, radiation and other things to make a Mum cringe in horror at. He eventually at almost 5 had the eye removed.

Our entire family look out for it in any photos of kids now. It is not something to be ignored as it can be life threatening as well as sight threatening.
1 reply · active less than 1 minute ago
Wow, how scary for your cousin and family. I admit how terrified I was too when I googled it because my Sam had white eye reflection. I hope he is ok now.
thanks for sharing, trish...
we tend to take our eye-sight for granted.
Will be sure to repost and retweet this one x
1 reply · active 717 weeks ago
thanks Grace. It is a very important message.

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