Monday, 31 July 2017

The Game of Things


Have you heard about the hilarious The Game Of Things , one person reads a topic card and those playing along write down their responses.

It can be first thing that comes to mind, there's no right or wrong answer.

The funnier the better. Trying to keep the answers out of the gutter is challenging when playing with 11 year old boys.


Once written , the responses are read aloud and you have to figure out who said what. Too easy with our family of four but when our friend K played it added an extra element.

You won't believe the THINGS...

We did have the ban the FART , BALLS and POO words - and have a limit on the use of inappropriate words.



The more creative and funnier , the louder we laughed.

I first saw my friend J post about the game on her Facebook page - she is parenting four boys aged 9 -11 ish.

This answer was hilarious .

What I loved most was how easy it was to get kids off their screens ! Two nights in a row ! Plus the belly aching laughter we shared.

The boys have their eyes on more games from Talkin’ Toys.
Talkin, toys is an entertaining and educational digital program, presenting news, reviews and un-boxings of the latest and coolest toys in the marketplace.

Subscribe to  YouTube channel , 
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In collaboration with Talkin' Toys we received a copy to keep and review.

Tuesday, 25 July 2017

Broken

Not me , my blog.
Though I am slightly cracked and very rusty.
I'm slow but I go.

Like the Tin Man.
Only he wanted a heart didn't he and tin doesn't rust.

I need oil and new joints. I digress, as much as my joints creak and ache, still I run.



My HTML is rusty too.
Did anyone else have the photobucket 500 error ?
I inadvertently had mine hosted by two others on their photobucket sites .
A change in policy and wham - ugly error messages.

No way am I paying $400 + to host a few blog images and labels.

I deleted what I didn't need or changed the photobucket images to my own url.
Google - I love you.
You have my heart always.

I earned my cape and now I off again for Cancer Council NSW in less than 3 weeks.

My sixth City 2 Surf and sixth year as a Gold Charity runner.
I'm slow but I go.
Why ?

Cancer Council NSW  https://city2surf2017.everydayhero.com/au/trish-taylor


No, I am feeling more than broken. In July my friend was diagnosed with Metastatic breast cancer. She's a mother of 2 children 6 & 9 , photographer, and wife. It is at present incurable or terminal for want of a word we all hate to hear.

She has hopes but we all have to die at some time , some sooner and this is not something she plans to dwell on.

Did you know that some Cancer patients in Australia can be forced to pay $10,000 month for life saving drugs not listed on PBS. 

She was recommended a new targeted drug that she can get on compassionate grounds, direct from the pharmaceutical company that makes it (as it is not a PBS listed drug).

Voice over inspiration #Robynmoore 's lovely words July 25 2015:
difference between optimist and pessimist - both walk past stable full of piles of manure ... pessimist says oh yuck that smells : optimist dives in and says there has to be a pony in there somewhere.

There have been so many ponies in my cancer journeys and I wish I had a pony for the City to Surf in 3 weeks .

Every donation counts $5 is perfect and tax deductible.
I remain optimistic I'll smash the finish line .
I'm also a Cancer Council advocate so I am very aware of where their fundraising $ go.





Friday, 14 July 2017

Cancer Diaries , the Mirror and the Cape.


It's been a long time between posts. Life is very busy.

When I look in the mirror I sometimes don't recognise the face staring back at me .
Looking - my life , my eyes wide open , I see how incredibly wonderful it is. I have very high anxiety due to cancers but I manage.

Yes , I get very scared at times but I have learned how to worry less. I pray, I love, I laugh and when the scary creeps in ...

Breath by breath, day at a time. Till my next followup appointment in 7 days.

I've been doing an immense amount of reading about building yourself up and moving forward , not dwelling on the negative; about taking chances and using my cancer diagnosis to build a better life for myself and help other people.



I still struggle with my self-image and looking in mirror definitely brings me down. Not to mention bed hair or hat hair.

“Mirror mirror on the wall. I'll always get up after I fall and whether I run, walk or crawl, I'll set my goals and achieve them all."
Unknown



Yes, I signed up for two fundraising events - 

Cancer Council NSW  https://city2surf2017.everydayhero.com/au/trish-taylor

Children's Tumour Fdn  https://nfmegaheromarch.everydayhero.com/au/trish


I always feel extremely humbled by the the generosity of not only my family, friends and blogging colleagues but complete strangers who are so willing to give in my name for the research into Cancer and NF.

I am participating in Mega Hero March to raise $$$ to continue to research 'cures' and support those afflicted by NF. Especially for our son Sam.

NO really it's all about the CAPE !

Neurofibromatosis can be a devastating condition. It has no cure. I have NF, as does my son. We are not the only ones in our extended family with this condition.

NF is a genetic condition which causes tumours to form on the nerves anywhere in the body at anytime.

Living with a very visible difference can be challenge. You can’t always hide it. Among other things learning issues, disfiguring tumours and extreme nerve pain can also be problematic for those with the condition.

Because NF causes benign tumours to grow anywhere in the body -sometimes they turn malignant and I had a rare malignant (cancer) sarcoma in 2014 and a few benign tumours removed.

On the whole my NF is quite mild in comparison (others in my family have been much more affected) except for the very rare malignant tumour.The Children's Tumour Foundation helps all of us lead better lives.

This is in 2 weeks , the City to surf for the Cancer Council is in 4 weeks. So more on that later.

Now my daily step goal is 12,000 steps !

Please help me help them by giving whatever you can -click on the link before - then use the 'Give Now' button.
$5 or $10 it all adds up - don't be shy every $ counts.